About Us
Who we are
Every day we’re here for people affected by Motor Neurone Disease (also known as MND).
MND moves fast. It takes away time, it takes away independence and it has no cure. Every piece of support, every research project, every pound raised, every kind word, and every day lived well, matters.
About our network
We are a membership organisation with over 13,000 members forming a powerful national and local network that provides information and support.
We have over 1,300 active volunteers in England, Wales and Northern Ireland and around 300 paid staff, all dedicated to improving the lives of people affected by MND, now and in the future.
Our culture and values
Our values are rooted in what our community told us they need. And they will drive everything we do.
By living them every day we’re stronger, more effective and truly focused on delivering our very best for the MND community.
We’re one strong team.
We work together as one MND Association – a community of people with MND, staff, volunteers, partners. We share a common vision and direction. We value diversity. We support each other. We are collaborative and work in partnership with external organisations and with professionals, scientists and others to further our impact.
We make every day count.
Time is precious. We make the most of it to help people with MND. We are proactive, responsive and efficient. We listen to what people need and support them in doing what’s important. We deliver at pace, but take the time needed to do things thoroughly. Every day we create impact for people with MND.
We think big.
We are the UK’s leading MND charity. People look to us for expertise and inspiration. We support new approaches, new treatments and new understanding. We are bold and ambitious – we think big and make ideas happen. We go beyond what’s expected to find new and better ways of doing things. We help set standards, influence care and drive change to shape a better future for people with MND.
We are determined.
People with MND are at the heart of all we do. We work with determination and a drive to make a difference. We have compassion and treat people with dignity and kindness. Every interaction is a chance to show that people affected by MND are heard and valued.
Equality, diversity and inclusion
We believe diverse organisations are more creative, more productive and stronger places to be. They generate better ideas and get more done.
Our commitment to inclusion is not just about being a great place to volunteer. First and foremost, it is about making sure what we offer truly meets the needs of all people with and affected by motor neurone disease, so we can reach more people and provide better support.
We host a number of network groups and forums that are open to staff, volunteers, people with and affected by MND, and Association members. These include Black and Asian Minority Ethnic and LGBTQIA+ networks.