Epilepsy Action are dedicated to creating world without limits for people with epilepsy. We put people affected by epilepsy at the heart of everything we do, and we value their input in all our activities. It is essential that Epilepsy Action’s work is guided by and relevant to the whole epilepsy community.
We want to ensure we hear from culturally and ethnically diverse voices to make sure all our work is relevant to them and in tackling the problems that they face. Too often, people from historically marginalised communities face additional barriers when it comes to accessing healthcare, understanding epilepsy, and accessing support.
The Ethnic Communities Panel will ensure that your voice is heard. We want to better understand the diverse experiences of people from ethnic communities who are affected by epilepsy. Your insights and feedback as a panel member will help us to identify core gaps and inequalities, while helping to shape our campaigns, services, and projects to ensure an inclusive and equal mission to help all affected by epilepsy.
Requirements:
- Affected by epilepsy (you live with epilepsy or are a carer for someone who is living with epilepsy)
- Attend quarterly online meetings
- Respond to messages through a volunteering portal
What you will be doing:
- Drive improvements for people with epilepsy from culturally and ethnically diverse communities, by influencing Epilepsy Action’s work and helping to set priorities for future work
- Ensure Epilepsy Action are representative and inclusive in their work
- Help identify gaps in access and representation and provide insight into how they could be changed
- Highlight areas of under representation, health related inequalities, or language barriers
- Provide feedback on projects and campaigns
- Help create new ideas and approaches for future campaigns
- Represent ethnic communities at events or charity campaigns
- Raising awareness of the Epilepsy Action’s goals and campaigns
The skills you need:
- Confident giving feedback on documents or in meetings
- Able to use a laptop or smartphone to answer messages, read documents and join online meetings
What's in it for you:
- Represent ethnic communities with epilepsy in Epilepsy Action’s work and in projects that we support
- Meet other people affected by epilepsy
- Learn about and impact our work
- Gain experience while building and developing personal and professional skills
Our Ethnic Communities Panel members carry out their roles around their daily lives. This role is very flexible and can be done whenever you are free.
