Epilepsy Action are dedicated to creating world without limits for people with epilepsy. We put people affected by epilepsy at the heart of everything we do, and we value their input in all our activities.

Young people’s voices are essential to shaping and supporting the future of Epilepsy Action. Too often, decisions regarding the wellbeing of young people are made without the input from those most affected. The Youth Panel ensures that young people have the opportunity to be heard, while providing feedback in shaping the services, campaigns, and projects that we work.

No one understands the challenges facing young people better than those experiencing it. If you have epilepsy and would like to be part of the change, we would like your insights and experiences at the heart of what we do. We need help to make our projects and campaigns more representative of young people by providing your opinions and coming up with new creative and innovative ideas.

Requirements:

Age: 16-25 years old
Affected by epilepsy (you live with epilepsy or are a carer for someone who is living with epilepsy)
Attend quarterly online meetings
Respond to messages through a volunteering portal

What you will be doing:

Suggesting how to make Epilepsy Action’s work more relevant to young people
Providing feedback on projects and campaigns
Help create new ideas and approaches for future campaigns
Representing young people at events or charity campaigns
Raising awareness of the Epilepsy Action’s goals and campaigns

The skills you need:

Confident giving feedback on documents or in meetings
Able to use a laptop or smartphone to answer messages, read documents and join online meetings

What's in it for you:

Represent the voices of young people with epilepsy in Epilepsy Action’s work and in projects that we support
Meet other people affected by epilepsy
Learn about and impact our work
Gain experience while building and developing personal and professional skills

Our Youth Panel members carry out their roles around their daily lives. This role is very flexible and can be done whenever you are free.

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Youth Advisory Panel