If you are passionate about making a difference for PWS families in Northern Ireland, we want to hear from you!

PWSA UK is a small charity providing lifelong support to all those affected by Prader-Willi Syndrome (PWS). PWS is a rare genetic condition causing an overwhelming and uncontrollable drive to eat that can be life-limiting, as well as learning and physical disabilities. We provide a dedicated helpline, a comprehensive information hub, a network of peer support groups, a varied programme of community events, training for professionals working with those with PWS, and support for vital research. Our aim is to help our amazing community overcome the challenges and live life to the full with PWS.

We are looking for a part time PWS Specialist Adviser for Northern Ireland to support the PWS community in Northern Ireland. PWS is a rare and isolating condition and our ambition it to reach families in Northern Ireland to provide impactful advice, support, information and training. The ideal candidate will have an in-depth working knowledge of health and social care systems and education in Northern Ireland as well as a belief in the potential and value of people with Prader-Willi syndrome.

You will need to be able to demonstrate excellent interpersonal and communication skills, as well as being self-motivated and able to engage with families, health care professionals and policy makers. You will build on the excellent work of our existing support worker to continue engage and enable the PWS community.

The position is part time (14 - 18 hours a week) and is home based and ideal for someone living in Northern Ireland

Prader Willi Syndrome Association UK

New Opportunities

PWS Specialist Adviser